Patients, carers, healthcare professionals and researchers came together on a number of occasions to discuss their thoughts and opinions on what the guide should be.

Stakeholders have been involved using a number of methods:

  • Co-design events with patients, carers, healthcare professionals and researchers
  • Face-to-face meetings between patients and researchers
  • Virtual healthcare professional groups
  • Virtual patient and carer groups

At each stage of the guide’s development, stakeholders have been included as co-design partners.

This is to ensure that the final product is something patients and carers will really want to use, and that it won’t create unnecessary burden for healthcare professionals.

 Above images from a set of visual minutes created at one of the guide events.

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University of Manchester
Northern Care Alliance NHS Foundation Trust
Funded by NIHR